Down Syndrome Association of Central Oklahoma
521 W Wilshire Blvd Suite 130
Tax Exempt Status Public Supported Charity
Mission Statement To raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.
Contact Information
Contact Name Hannah Barnthouse
Contact email
Address 521 W Wilshire Blvd Suite 130
Phone (405) 600-9981
How to Give
Donate with Credit Card
Other ways to donate, support or volunteer The Down Syndrome Association of Central Oklahoma, Inc. is a 501(c)3 non-profit and is located at 600 NW 23rd St., Suite 206. The organization was founded in January 2000, by parents of children with Down syndrome. The purpose of the organization is aligned with its mission which is “raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.” Financial gifts can be given via online, via cash, check, pledge or in-kind. Volunteers are needed weekly for the tutoring program, Kylee's Kitchen, Kylee's Kitchen for kids and special events. Learn more at
Financial Summary
Projected Revenue $360,000.00
Projected Expenses $360,000.00
History and Background
Year Founded 2000
IRS Ruling Year 2000
State Registration Expiration Jan 2020
Mission To raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.

Down syndrome is a genetic condition that occurs in 1 in 691 births. People with Down syndrome are born with an extra copy of their 21st chromosome, which can cause cognitive delays and medical issues. For parents, raising a child with Down syndrome comes with joy, but it also comes with challenges. When a child is born with a disability, that child’s parents are immediately thrust into a new, complicated world. From estate planning to educational rights, parents must be armed with a variety of specific information so they can be the best possible advocate for their child. In the middle of the challenges, it can be difficult to see the beauty and joy that comes with raising a child who is differently-abled.

The Down Syndrome Association of Central Oklahoma (DSACO) offers hope and support to families when they need it the most. We not only support the families, we celebrate with them and show them the joy children with Down syndrome bring to the world. DSACO exists solely to raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome. It is the only organization of its kind in central Oklahoma.

DSACO offers a variety of important programs to people with Down syndrome and their families, from birth into adulthood. Programs include: microwave-based cooking classes for teens and adults to teach independent living skills; a free tutoring lab; parent support groups; quarterly workshops; social activities; educational outreach to schools; medical outreach; new parent support and more.


Over the past several years, the Down Syndrome Association of Central Oklahoma has grown tremendously. The staff has grown from one employee to three, and now includes an Executive Director, Program Coordinator and Event Coordinator. Together, with the support from a 21-member Board of Directors, we have been able to expand and grow our programs.

In calendar year 2016, we started five new programs. First, we started a Teen & Adult Self-Advocacy Workshop Series. This workshop series is meant to teach teens and adults how to live more safely. and independently. We started a life-skills cooking class for 8-12 year olds, called Kylee's Kitchen for Kids. Through these classes they learn how to make snacks in a safe environment, utilizing the microwave. They also build social skills and friendships. We also started two social groups, one for elementary aged children with Down syndrome, and one for teens and adults. We started a revised tutoring program, that is free to all parents.·

DSACO has grown tremendously thanks in part to the generosity of our donors. DSACO has dreams of expanding existing programs and starting new ones to meet the needs of our families that are not currently being met. We would like to start a nutrition program. Children with Down syndrome have a lower metabolic rate and must be very careful with their food choices. We want to start a program to teach children with Down syndrome how to make healthy choices. We would like to start summer camp opportunities for our kids, who are often not included with typical kids during the summer. Our biggest and most ultimate dream, is to have our own independent facility.

Our most pressing needs are:
1. Financial donations
2. In-kind donations for existing programs
3. Volunteers
CEO/Executive Director Statement The mission of the Down Syndrome Association of Central Oklahoma is to “raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.”

We focus on each individual’s ability, not disability. Through our programs we support families and instill independence and confidence in people with Down syndrome - all while teaching the community that we truly are more alike than different.

In an effort to maintain and grow our programs and services, we are reaching out to individuals and businesses to ask for financial support.

We could not exist without the generous support of donors like you. We hope you will join us to help create a world of poss-abilities for all people with Down syndrome.
Sarah Soell 
Executive Director
Area Served
Area Served
Geographic Area Served
Central Oklahoma
Description A microwave-based cooking class for teens and adults with Down syndrome to help build independent living skills.
Population Served People/Families with of People with Disabilities
Description One on one tutoring program with a Special Education teacher who lesson plans for each individual student with Down syndrome.
Population Served People/Families with of People with Disabilities
Description Speech therapy lessons conducted by certified speech language pathologist for children, teens and adults with Down syndrome.
Population Served People/Families with of People with Disabilities
Description We offer monthly workshops for parents based on what they're dealing with/ struggling with with their children/ adults with Down syndrome. We bring in professionals to conduct these workshops.
Population Served People/Families with of People with Disabilities
Description We offer support, resources and information to parents who have received a prenatal diagnosis of Down syndrome or parents who just gave birth to a child with Down syndrome. We first reach out to congradulate them, then we send them a bag full of information, guidelines, gifts and resources and then we connect them with a parent who is further down the road than they are so they can cast a vision of what their journey will be like. This becomes their first friend within the organization. 
Population Served People/Families with of People with Disabilities
CEO/Executive Director
CEO/Executive Director Sarah Soell
Start Date Jan 2018
Experience Sarah Soell, Executive Director, has been a member of DSACO since 2006. As a parent of a child with Down syndrome, she has volunteered with the organization in numerous activities, having served on the Festival and 5K Committee, serving as co-chaired for two years. Prior to accepting the role as executive director, she was president of the board for DSACO. Before joining DSACO as the new executive director, she worked for the University of Oklahoma as the associate vice president for Public Affairs for 17 years, where she coordinated numerous events and projects, advertising and various other media related activities for the Office of the President. Other past job experiences include working for the University of Houston, The Oklahoma Beef Industry Council and Oklahoma State University. A graduate of Oklahoma State University, she earned her bachelors degree in Hotel Management and her masters degree in Hospitality Administration with a specialization in meeting planning. She is involved in various other organizations including serving as a sustaining member of the Junior League of Norman, where she served on the board for two years, and serves as Vice President of the Cleveland County 4-H Foundation. She also serves as a cheer coach for the Noble Youth Cheer Association. She and her husband, Preston, along with their three children reside in Norman, where they are members of the First Christian Church. Sarah was a member of the 2003 Leadership Norman Class and was selected as Oklahoma Magazine 40 under 40 in April 2008. Sarah never turns down a hug and is excited about serving the families of DSACO.
Number of Full-time Staff 3
Number of Part-time Staff 0
Number of Contract Staff 4
Number of Volunteers 700
Does CEO/Executive Director have formal evaluations? Yes
Management reports to board? Yes
Organizational Plans
Fundraising Plan Under Development
Communication Plan Under Development
Strategic Plan Yes
Management Succession Plan Under Development
Organization Policies and Procedures Yes
Board Chair
Name Bobby Kern
Company Affiliation Board President
Term Jan 2018 to Jan 2021
Board of Directors
List Current as of July 01, 2019
Board of Directors List
Brooke BlackwoodVoting
Leslee BoswellCommunity VolunteerVoting
Lupe CerbuVoting
Eilene FranksCommunity VolunteerVoting
Cindy GouldVoting
Lisa HancockNorman Regional Health SystemsVoting
Heather Hancock-BlackburnSelf-employedVoting
Joshua HarlowVoting
Bobby KernOklahoma ChristianVoting
Joseph MalloryVoting
Ashley ProctorVoting
Breanna RobisonVoting
Tylicia RollinsVoting
Catie RossVoting
Jamie SmithVoting
Laura TontzVoting
Jennifer YoungOklahoma City ThunderVoting
Current Fiscal Year
Fiscal Year July 01, 2019-June 30, 2020
Current Year Budgeted Total Income $360,000
Current Year Budgeted Total Expenses $360,000
Financial Documents
IRS Letter of Determination
Prior Three Years' Financial History
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201820172016
Foundation and
Corporation Contributions
Government Contributions$0$0$0
Individual Contributions------
Investment Income, Net of Losses$1,610$508$798
Unrealized Gain/Loss$1,421----
Membership Dues------
Special Events$176,335$27,044$178,244
Revenue In-Kind------
Expense Allocation
Fiscal Year201820172016
Program Expense$131,838$119,926$201,666
Administration Expense$47,281$14,279$31,583
Fundraising Expense$116,208$9,212$18,334
Payments to Affiliates------
Total Revenue/Total Expenses1.490.571.42
Program Expense/Total Expenses45%84%80%
Fundraising Expense/Contributed Revenue61%45%17%
Assets and Liabilities
Fiscal Year201820172016
Total Assets$595,183$458,790$518,911
Current Assets$581,495$448,435$511,705
Long-Term Liabilities------
Current Liabilities$117$7,145$5,350
Total Net Assets$595,066$451,645$513,561
Short Term Solvency
Fiscal Year201820172016
Current Ratio: Current Assets/Current Liabilities4970.0462.7695.65
Long Term Solvency
Fiscal Year201820172016
Long-Term Liabilities/Total Assets0%0%0%
Funding Sources
Top Funding Sources
Fiscal Year201820172016
Top Funding Source & Dollar AmountContributions $191,588Earned Revenue $33,390Special Events $178,244
Second Highest Funding Source & Dollar AmountSpecial Events $176,335Special Events $27,044Contributions $108,343
Third Highest Funding Source & Dollar AmountEarned Revenue $67,795Contributions $20,559Earned Revenue $71,026
Endowment? No
Endowment Spending Policy N/A
Credit Line? Yes
Reserve Fund? Yes
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next Five Years? Yes
Comments on Financials
Foundation Staff Comments
All prior year financial information is from the IRS Form 990s.
Note: In 2017 Organization changed fiscal years and reported 6 months between January 1-June 30, 2017 before fiscal year 2018 started.
Contributions may include foundations and corporations when the breakout was not available.
The financial information presented is obtained from the following sources: IRS Form 990, independent audit reports, financial statements – board approved when available, and supplemental information from the organization. We do not warrant or guarantee the timeliness, errors or inaccuracies. With respect to information regarding financial performance, nothing on this website should be interpreted as a statement or interpretation by OCCF staff.
Organizations with a GiveSmartOKC profile are responsible for updating information annually within 45 days following the end of their fiscal year.
Address 521 W Wilshire Blvd Suite 130
Primary Phone 405 600-9981
Contact Email
Give with Credit Card
CEO/Executive Director Sarah Soell
Board Chair Bobby Kern
Board Chair Company Affiliation Board President