Epilepsy Foundation of Oklahoma
11212 N. May Ave, Ste 108
Oklahoma City OK 73120
Tax Exempt Status Public Supported Charity
Mission Statement

Our mission for the Epilepsy Foundation of Oklahoma is:

 

To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. 

 

 

Contact Information
Contact Name Jenniafer Walters
Contact email jwalters@efa.org
Address 11212 N. May Ave, Ste 108
Oklahoma City, OK 73120
Phone (405) 463-0673
Fax 405-463-0985
County Oklahoma County
How to Give
Donate to Endowment http://occf.org/eaok/
Other ways to donate, support or volunteer
  • Mail a check
  • Volunteer opportunities
  • Donate with PayPal on our website
  • Donate through GiveSmartOKC
Financial Summary
 
 
Projected Revenue $29,048.00
Projected Expenses $35,045.00
History and Background
Former Names
NameYear
Epilepsy Association of the Sooner State2003
Epilepsy Association of Oklahoma2015
Year Founded 1978
IRS Ruling Year 1980
State Registration Expiration Jan 2015
Statements
Mission

Our mission for the Epilepsy Foundation of Oklahoma is:

 

To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. 

 

 

Background
The Epilepsy Association of Oklahoma began as a support group which was part of the Wesley United Methodist Church in Oklahoma City.  
However the mission soon expanded to include the enlightening of all the people of Oklahoma about epilepsy, including those who have epilepsy and their families and friends as well as police, firemen, employers, schools, etc.
Impact

MORE PEOPLE DIE FROM EPILEPSY THEN BREAST CANCER!

  • 65 MILLION: Number of people around the world who have epilepsy.3 MILLION: Number of people in the United States who have epilepsy.1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.150,000: Number of new cases of epilepsy in the United States each yearONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
  • 6 OUT OF 10: Number of people with epilepsy where the cause is unknown.
  • DOLLARS IN OKLAHOMA:
  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • CDC Program - Education About Seizures For Schools & Nurses, Communities & Work Force
  • Annual Epilepsy Camp & Health Fairs To Educate
  • Epilepsy Literature
  • Support Groups Throughout Oklahoma
  • Website With Resources & Social Media
  • Office Staff & Monthly Newsletter
  • CAN Program

  • CAN MISSION:
    A – S – A – P
    A - Raise Awareness
    S - Service To Community
    A - Advance / Fundraising
    P – Participate




Needs
Volunteer's for Events and Health Fairs, On going funding partnership with Companies or related Organization, Medical assistants  with pharmaceuticals.
 
CEO/Executive Director Statement

Update from the Executive Director of the NEW "Epilepsy Foundation of Oklahoma"

Welcome and thank you for visiting the Epilepsy Foundation of Oklahoma GiveSmart site. We are honored that you have joined us, and I hope you will find all the information you need here.

This year 2016, the Epilepsy Foundation of Oklahoma celebrated a great victory. After 38 years of operating independently we became a chapter of the Epilepsy Foundation of America. With their unwavering support and assistance we'll be able to make tremendous strides in our community.

In my role as Executive Director, I have the privilege of working with wonderful doctors and members of our community who strive to improve the lives of those living with epilepsy every day. I will continue my fight in raising AWARENESS, SERVICE to our community, our ADVANCEMENT in fundraising and PARTICIPATION in activities throughout the state, with the help and support of the Epilepsy Foundation of America.

We are committed to operating with an abundance of energy to bring our members information and referral services they need. We are passionate about educating the community about seizures and epilepsy, in order to reduce the stigma that many individuals face.

Thank you for your on going support throughout the years and always remember YOUR NOT ALONE and we're here to help.

I'm very excited for the future of the new Epilepsy Foundation of Oklahoma

Jenniafer Walters
Executive Director

Board Chair Statement
I challenge each and everyone of you to speak out about Epilepsy and NOT be afraid of Epilepsy. A tongue has NO bone but it can BREAK a heart, so...watch what you say to someone. Epilepsy is Not a MENTAL illness, Epilepsy is Not a CURSE, Epilepsy is Not CONTAGIOUS, Epilepsy is a Disorder, Not a DISEASE. So don't be unaware, educate yourself.
Area Served
Area Served
Geographic Area Served
Oklahoma - Statewide
State of Oklahoma
Service Categories
Secondary Organizational Category Diseases Disorders & Medical Disciplines/Epilepsy
Programs
Description
CDC Seizure Training for School Personnel, School Nurses, Law Enforcement (We have our CLEET #), First Responders and our new Senior Program. We provide FREE seizure training for schools, living centers, work place, law enforcement people any facilities to educate on seizures. We will leave a seizure kit, DVD's and material to help each place long after our training. We also provide seizure helmets and AmTrykes for people in need.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. EFO is educating schools, work places, senior living centers, people and our first responders on seizures and how to take care of people with epilepsy, signs to look for and that their ordinary people too.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has provided CDC Seizure Training to over 1200 school personnel and nurses, over 65 Law Enforcement and over 160 senior in centers. EFO has given away 5 AmTrykes to children with epilepsy and 75 seizure helmets to families with child that have epilepsy and to schools.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma and the CDC
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. We have served almost 1500 Oklahoman's educating them on epilepsy, help 5 children get mobile and out of their homes and provided 75 helmets to protect children's head. 
Description We provide awareness in our communities and out reach programs.  Our website provides links to key educational resources and opportunities available in the community in the State of Oklahoma.Social networking through Facebook is also provided on our website. EFO are partners in 7 On The Road conferences across the state in rural areas, we help with Health Fairs for all ages, Doctors Educational Classes 4 a year, Epilepsy Symposium each year and Epilepsy Webinars. EFO are partners with Sooner Start, we help with transitioning of children with disabilities into school also apart of Caregivers Coalition helping caregivers with their loved ones that have a disability of all ages. EFO can mail out epilepsy material across Oklahoma. At the State Capitol each year for Disability Awareness Day.  Support Groups across our state.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has reached over 5000 people in the state of Oklahoma educating on epilepsy, providing resources and material/brochures for families, caregivers and individuals.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma, Sooner Success, Sooner Start, Caregivers Coalition and Epilepsy Foundation of America
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. EFO goes where we are needed to provide materials, resources for families, caregivers and individuals needing help.
Description The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Our CAN groups raised over $5000 in 6 months to benefit the EFO and our programs here in Oklahoma.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has 5 regions set-up in Oklahoma with 9 Team Leaders and 25 Epilepsy Ambassadors to help the leaders. Having these wonderful volunteers across Oklahoma that understand the struggles of EPILEPSY and what families go through, they help the EFO connect with them and get resources to people with epilepsy. We fight together in educating and letting everyone know "They are not alone in this battle".
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma and our National office. 
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success.
A - S - A - P
A - Raise Awareness
S - Services to our Community
A - Advance Programs
P - Participate in Fundraising  
Description Each year in OKC there is an Annual Walk, that we sponsor and support.
Strategy
Population Served Families Children and Youth (0 - 19 years) General/Unspecified
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. Let Oklahoma families know we are here to help support them, let them know their not alone, raise awareness, educate and raise funds for our programs, epilepsy material and for research on epilepsy.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. EFO Walk is a family fun event for all ages.
Description EFO will provide seizure medication assistance for 1 month, help with long term medication with a Personal Assist Program and our discount medication card.  
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Stepping in and paying for an one  month prescription we have helped over 60 individuals in a year.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. The Personal Assist Program is for 6-12 months, we have helped over 1500 people in a year.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. Our Executive Director will meet the individual at the pharmacy and pay for the medication, the Personal Assistance Program we mail out an application or set a meeting up to help the patient with getting everything filled out and processed, we can mail out our discount proscription card to anyone.
Comments on Programs
CEO/Executive Director/Board Comments
We at the Epilepsy Foundation of Oklahoma are working hard to get the word out about "Epilepsy". It's not something to be embarrassed about,1 out of 26 people and over 3.5 million people have epilepsy in the U.S. More people die from epilepsy then Breast Cancer. So the Epilepsy Foundation is educating and training the people of Oklahoma and providing help where we can. Every donation helps our cause in getting the CDC Seizure Training Programs, literature, medication and support groups. The Epilepsy Foundation of Oklahoma personally "Thank You" for your support in our mission.
CEO/Executive Director
CEO/Executive Director Jenniafer Walters
Start Date Sept 2006
Email jwalters@efa.org
Experience
I'm proud to be apart of this organization here in Oklahoma. My daughter has had epilepsy all of her life. I have walk beside her on this journey and have seen first hand the struggles and heartache she has gone through. She has endured more than a person should for a young adult. As always, I'll fight this battle with her and let her know she is not alone. I will always speak up and  advocate  for anyone with epilepsy.
Staff
Number of Full-time Staff 1
Number of Part-time Staff 0
Number of Contract Staff 1
Number of Volunteers 3
Staff Retention Rate 100
Are professional development opportunities provided? Yes
Does CEO/Executive Director have formal evaluations? Yes
Management reports to board? Yes
Staff Demographics - Gender
Male 1
Female 4
Organizational Plans
Fundraising Plan Yes
Policy against commission-based compensation for fundraising consultant No
Communication Plan Under Development
Strategic Plan Under Development
Management Succession Plan Under Development
Organization Policies and Procedures Under Development
Government Licenses
Is your organization licensed by the government (federal, state and/or local)? Yes
Comments on Staff & Management
CEO/Executive Director/Board Comments
While we don't have a formal fundraising plan, the majority of our activities raise funds for our organization. Events such as our, annual 5K Run in March,annual Triathlon in July and an Epilepsy Walk in November followed by a dinner and our new Community Action Network.
Board Chair
Name Ms. Shelly Douglas
Company Affiliation Cyberonics,Community Health Charities,Community Foundation,Lundbeck LLC.,Eisai Inc., Supernus Pharmaceuticals,Sunovion Pharmaceuticals, Ambucs,NeuroPace
Term Jan 2017 to Jan 2020
Email jwalters@efa.org
Board of Directors
List Current as of Feb 01, 2017
Board of Directors List
NameAffiliationStatus
Steve Carroll CyberonicsVoting
Shelly Douglas Community Health CharitiesVoting
Derick Mashaney VolunteerVoting
Rachelle McCoy Eisai Inc. Epilepsy Sales SpecialistVoting
Scott Mullins Eisai Inc. Epilepsy Sales SpecialistVoting
Charlotte Richardson AAA InsuranceVoting
Jill Ryan St. Anthony Hospital PhysicianVoting
Philip A. Schovanec AttorneyVoting
Ryan Sites GeneDXVoting
Lisa Spencer Community VolunteerVoting
Jenniafer Walters Epilepsy Association of OklahomaVoting
Kevin D. Walters Xpedx, Senior Account ManagerVoting
Meredith Wilkerson, PHD Lynn Institute Clinical Research CoordinatorVoting
Board Demographics - Gender
Male 6
Female 6
Governance
Board Term Lengths 3 years
Percentage of Board Making Monetary Contributions to the Organization 90 %
Percentage of Board Making In-Kind Contributions to the Organization 100 %
Board Orientation Yes
Constituency Includes Client Representation Yes
Written Board Selection Criteria? Yes
Standing Committees
Advisory Board / Advisory Council
Youth
By-laws
Community Outreach / Community Relations
Education
Capital Campaign
Endowment
Program / Program Planning
Research Division
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Volunteer
Student Affairs
Donor Services
Legislative
Marketing
Project Oversight
Advisory Board
Advisory Board Members
NameAffiliation
Shirley Bracken Arthur
Andee Cooper TARC
Derick Mashaney EAO Volunteer
Cara O'Daniel Cyberonics
Phillip Schovanec Attorney w/Moricoli, Harris & Cottingham & Hurst
Beverly Young Work Activity Center Inc.
Comments on Board & Governance
CEO/Executive Director/Board Comments
All of our board members volunteers their time, no body gets paid.  Each and everyone of our board members have been touched by Epilepsy. They have epilepsy their self or a family member, friend or on the job. The board members of Epilepsy Foundation have compassion, understanding and experience to give to others.
Current Fiscal Year
Fiscal Year Oct 01, 2015-Sept 30, 2016
Current Year Budgeted Total Income $29,048
Current Year Budgeted Total Expenses $35,045
IRS Letter of Determination
Prior Three Years' Financial History
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201520142013
Contributions------
Foundation and
Corporation Contributions
$23,555$21,649$13,875
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified------
Individual Contributions------
------
------
Investment Income, Net of Losses$7,668$7,599$6,958
Unrealized Gain/Loss------
Membership Dues----$150
Special Events$16,919--$15,364
Revenue In-Kind------
Other----$38
Expense Allocation
Fiscal Year201520142013
Program Expense$35,370$31,757$23,294
Administration Expense------
Fundraising Expense$3,103$3,134--
Payments to Affiliates------
Total Revenue/Total Expenses1.250.841.56
Program Expense/Total Expenses92%91%100%
Fundraising Expense/Contributed Revenue8%14%0%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$42,575$32,906$38,549
Current Assets$40,521$30,852$36,495
Long-Term Liabilities------
Current Liabilities------
Total Net Assets$42,575$32,906$38,549
Solvency
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities------
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Funding Sources
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar AmountFoundation & Corporation $23,555Foundation & Corporations $21,649Special Events $15,364
Second Highest Funding Source & Dollar AmountSpecial Events $16,919Investment Income $7,599Foundation & Corporation $13,875
Third Highest Funding Source & Dollar AmountInvestment Income $7,668 --Investment Income $6,958
Endowment? Yes
Endowment Spending Policy Percentage
Endowment Spending Policy Percentage (if selected) 5 %
Credit Line? Yes
Reserve Fund? Yes
Capital Campaign
Currently in a Capital Campaign? No
Comments on Financials
CEO/Executive Director/Board Comments
As of April 2016 the Epilepsy Association of Oklahoma merged with the Epilepsy Foundation of America and our name changed to the Epilepsy Foundation of Oklahoma and we became a chapter so financials will reflect Oklahoma too. This merger will only strengthen our ability to assist our fallow Oklahoman's with our many existing programs. With the strength of our national organization, behind us we hope to bring even more programs to the state.
Foundation Staff Comments
All historical financial information is from IRS Form 990s.
 
The financial information presented is obtained from the following sources: IRS Form 990, independent audit reports, financial statements – board approved when available, and supplemental information from the organization. We do not warrant or guarantee the timeliness, errors or inaccuracies. With respect to information regarding financial performance, nothing on this website should be interpreted as a statement or interpretation by OCCF staff.

Organizations with a GiveSmartOKC profile are responsible for updating information annually within 45 days following the end of their fiscal year.


 
Address 11212 N. May Ave, Ste 108
Oklahoma City, OK 73120
Primary Phone 405 463-0673
Contact Email jwalters@efa.org
Give to Endowment http://occf.org/eaok/
CEO/Executive Director Jenniafer Walters
Board Chair Ms. Shelly Douglas
Board Chair Company Affiliation Cyberonics,Community Health Charities,Community Foundation,Lundbeck LLC.,Eisai Inc., Supernus Pharmaceuticals,Sunovion Pharmaceuticals, Ambucs,NeuroPace