Oklahoma Family Center for Autism
2801 NW 154th ST
Edmond OK 73013-8805
Tax Exempt Status Public Supported Charity
Organization Does Business As (DBA) Name(s)
Organization DBA
AutismOklahoma.org
Mission Statement Investing together to grow, learn, and serve the families of
Oklahoma affected by autism.
Contact Information
Contact Name Melinda Lauffenburger
Contact email info@autismoklahoma.org
Address 2801 NW 154th ST
Edmond, OK 73013 8805
Phone (405) 315-6337
County Oklahoma County
Alternate Address 13919-B N. May Avenue #106
Oklahoma City OK 73134
Alternate Phone 405 831-5160
How to Give
Donate with Credit Card https://www.autismoklahoma.org/donate
Other ways to donate, support or volunteer
Volunteer
There are many ways to volunteer with Autism Oklahoma.You can help with a parent group in your community or assist with childcare. We have mentorship opportunities with teens or young adults. More information about these volunteer opportunities are on the parent support group pages at our website.
 
Our biggest annual event is the PieceWalk, which is organized by great volunteers serving on PieceWalk committees. The commitment is for 12 months, meets once a month and most position can be done from your home computer. see Piecewalk.org for more details.

 
Our Wish List
  •     MAC Computers
  •     Books and DVDs about autism
  •     Sensory Items
  •     $25 gift cards for awards or volunteer recognition
  •     Downtown Studio space for artists
  •     Monthly meeting space for 40-50 people
  •     Raffle items – gift cards (WalMart, Target, restaurants, stores, Visa check cards etc.)
  •     Office supplies – reams of paper, envelopes, stamps etc. 
 
 
Financial Summary
 
 
Projected Revenue $565,918.00
Projected Expenses $563,119.00
History and Background
Supported Organization AutismOklahoma.org
Year Founded 2002
IRS Ruling Year 2007
State Registration Expiration Mar 2017
Statements
Mission Investing together to grow, learn, and serve the families of
Oklahoma affected by autism.
Background AutismOklahoma.org started in 2002 in Edmond, Oklahoma.  Today, we have eight parent support groups throughout Oklahoma, an annual PieceWalk & 5K, summer camps, college, teen and adult groups as well as many more community events and social opportunities. We also have 2 pre-employment clubs for young adults called Bee's Knees and Invisible Layers Productions.  Our websites, e-newsletters, social media, and our mascot Dash provide ways for us to to reach out and connect with each other and with the community.  www.AutismOklahoma.org, www.InvisibleLayers.com, www.PieceWalk.org
Impact

 Summary of Common Philosophy:

·      Every person with autism is unique and has something to offer our community.

·      By creating interest based connections, individuals with autism are able to reach their potential.

·      We are families helping families and every family has a unique story and journey.

·      We are seizing the opportunities to reach our communities and our state with a positive autism awareness message.

 
 Core Values:

1.    Every person with autism is unique and has something amazing to offer our community and society.

 
2.    By creating interest based connections, individuals with autism are able to shine and reach their potential. 

 3.    In order to better serve our children and other families, we must become engaged family participants rather than bystanders.  Government or education systems cannot and will not "fix" our children or families but we can increase opportunities, joy, and outcomes by helping each other.

 4.    We are families helping families!  AOK will build a structure to support engaged parents and families through their journey.  This is our best chance of helping 1 in 50 children who have autism.

 5.    We will develop and invest in parent leaders who are engaged and participating to support our cause and the programs of AOK.

 6.    All our groups will provide a safe place to share experiences and challenges with other families who can relate and support each other.  "Safe place" means that we are grounded in grace and kindness toward everyone.

 7.    We will not judge others and we will not criticize approaches that work for families.

 8.    Creativity is essential to reaching individuals with autism and we are all changed by providing a platform that encourages creativity and expression.

 9.    We will encourage parent leaders to develop innovative ideas that have a big impact on individuals and families affected by autism.  We have grown by seizing opportunities to make something big happen!

 10.We are committed to bringing out the best in others and will always have hope.

 11.We will seize the opportunities to reach our communities and our state with a positive autism awareness message. 

 12.  We will look for and invest in programs that have a big impact on individuals with autism and their families.

 
Needs AutismOklahoma.org needs volunteers, including parent support group leaders, website developers, graphic designer, and committee leaders for our annual PieceWalk.
CEO/Executive Director Statement AutismOklahoma.org provides a way for engaged parents to work together to build programs and experiences that benefit families and individuals with autism.  Donations to AutismOklahoma.org directly benefit families living in Oklahoma. We provide the infrastructure and models for parents to get involved and make a difference in Oklahoma.
Area Served
Area Served
Geographic Area Served
Oklahoma - Statewide
Blanchard, Canadian Valley, Edmond, Guthrie, Muskogee, Norman, Oklahoma City, Shawnee, Stillwater, Latino community in Oklahoma City, Oklahoma City Metro area.   Statewide support and national impact for pre-employment models and films.
Service Categories
Secondary Organizational Category Diseases Disorders & Medical Disciplines/Autism
Tertiary Organizational Category Health Care/Patient & Family Support
Programs
Description
Parent support groups provide peer mentoring, emotional support, educational programming, and family safe events. AutismOklahoma offers parent support groups in 6 Oklahoma geographies under the following names: AutismCanadianValley, AutismEdmond, AutismMuskogee, AutismNorman AutismOKC, AutismStillwater. AutismLatino serves the Hispanic community in the Oklahoma City metro area. In addition, we have a Writer's Group for parents who desire a writing experience with a professional author.  Approximately 10-20 families attend each group every month for an estimated impact of 180 families each year per group or 1440 families for all groups.  Groups provide childcare for toddlers and school age children with autism and also include regular social groups.  
 
These eight support groups leaders work together regularly and receive annual training and development.
Strategy
Population Served People/Families with People of Developmental Disabilities Families At-Risk Populations
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Helping families feel less isolated and alone.  Help for families to find resources that they need to help their loved one with autism.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. Family support and understanding for more inclusive participation in communities, schools, and social events  
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Survey data from parents and participants
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. The number of programs developed from our parent support group structure has increased from 3 to 31.  Parents are getting more involved to assist each other and engage the community for additional programming and support.
Description
AutismOklahoma provides special groups and summer experiences to help engage children, teens and young adults in social activities.  Some groups are held in conjunction with parent support groups and included The College Group, Teen 2 Teen, and Friends.  
 
AutismOklahoma also provides innovative summer experiences in interest areas to encourage communication and involvement.  Some of these experiences include Big Swanky Art Show, Comiccamp, Little Swanky, Camp Noggin, AKON Adventure and Summer Advance.   
 
In 2013, over 200 children, teens and young adults attended social groups and camps offered by AutismOklahoma. 
Strategy
Population Served Elderly and/or Disabled Children and Youth (0 - 19 years) Adults
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Persons with autism will be more willing to leave their homes to participate in an activity with others.  
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. The ultimate goal is for young people to have social opportunities in their area of interest so that they can be a contributor in the community.    
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Survey of parents and notes of leaders.
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. Each year, we are providing more camps and getting more participation.  Parents are extremely excited when their child has an opportunity to excel in an environment where they are not judged for their differences but where their differences are featured.  
Description
AutismOklahoma provides the PieceWalk & 5K on the first Saturday in May in downtown Oklahoma City.  The PieceWalk is the largest single autism event in our state and draws upwards of 8000 people annually.  The PieceWalk is an awareness and fundraising event that features entertainment, resources, and an opportunity to build community around individuals affected by autism.  
 
AutismOklahoma also provides Boots N Bling, an annual kick-off event that includes information about our programs and about autism.  The PieceWalk also includes other awareness events including chili suppers, restuarant nights, bake sales, and other events.  In addition, we provide education to public schools who partner with us to celebrate autism during our PieceWalk season.  Our mascot, Dash, has a full body costume and visits community events.  In addition, Dash has a twitter account to communicate with his fans.  
 
AutismOklahoma provides a number of other autism awareness tools including our website, e-news, social media strategies, Public Service Announcements and even a full-length movie. 
 
All of these programs are designed to engage our community in understanding and accepting people who have autism.  
Strategy
Population Served Families Adults Children and Youth (0 - 19 years)
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. As a result of the PieceWalk, families are more confident to participate in the community.  
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. Our ultimate success will occur when families can more fully participate in their communities.  Individuals with autism need more support than 2 parents can offer.  Programs like the PieceWalk create an environment to promote participation of a group of supporters for each individual with autism and their family.  
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. More participation in the PieceWalk. We would like to see more people with autism with their own support team participating in this event every year. We also want to see our subscribers, followers, website traffic increase as a result of more community involvement.
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. All of our programs have grown significantly over the past 3 years.  Last year, we had 185 teams participate in the PieceWalk.  
Description

Bee's Knees and Invisible Layers Productions (ILP). Invisible Layers are innovative models and pre-employment clubs for young adults who have autism. The club provides for 3 primary needs.

1. The clubs are an avenue for developing social and team skills in an area of interest. This is an important consideration since many young adults with autism isolate if not compelled to participate in life through an interest area.

2.  The clubs provide for "alternative pre-employment" in that the members learn skills to create quality art and videos while building and maintaining a business model with real customers. 

3. The group members participate in developing creative ways to express their views and tell their stories. The club members demonstrate personal transformations in confidence and willingness to participate in life.   

As far as we know, our clubs are one of a kind opportunity and a unique model for personal transformation.  

Strategy
Population Served Adults Adolescents Only (13-19 years)
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program.
Identification of products and markets that will buy products.
Engaging individuals with autism who can be successful in interest programs.
Learning skills to work as a team. 
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. Individuals with autism could become employed in their area of interest.  Individuals could contribute at a significant level of contribution that would be meaningful and enjoyable.  
Program Success MonitoringHelpDescription of the tools used to measure or track program impact.
Parent and individual survey to measure confidence and ability to work together
Willingness to participate  in community activities
Success in developing high quality products 
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success.
Our Bee's Knees group participates in the Big Swanky Art Show that attracted 400 people and every piece of art was sold.
 
Invisible Layers has generated $2000 monthly from business customers by developing 3-5 minute website videos for other non-profits and businesses. 
Comments on Programs
CEO/Executive Director/Board Comments

AutismOklahoma.org is a grassroots parent’s organization of families affected by autism in Oklahoma. We received our 501c3 in October of 2007 and have annual revenue approaching $250,000.

Today, 1 in 68 children born will be diagnosed with autism. This is an exponential increase with an unknown cause. Autism is not curable but individuals can recover from many autism symptoms. Unfortunately, Oklahoma is one of 17 states that do not provide medical insurance for autism treatments. As a result, Oklahoma families affected by autism have to unite and help each other by finding creative solutions.

Taking the lead in this effort, AutismOklahoma.org provides support for more than 3500 families annually.

Our websites include www.AutismOklahoma.org, www. PieceWalk.org, www.InvisibleLayers.com

· Fast growth is a big challenge, but the statistics of autism prevalence are indicative of the need for more and more support for families in Oklahoma.  We are continuing to grow and add parent support groups, summer programs and pre-employment clubs.   

 
Our organization is primarily run through volunteers.  We have over 600 volunteers annually.  One of our biggest challenge is continued growth with minimal staff and superior management and focus.  
 
 
CEO/Executive Director
CEO/Executive Director Melinda Lauffenburger
Start Date May 2002
Email melinda@autismoklahoma.org
Experience Melinda Lauffenburger is the founder of AutismOklahoma.org.  The organization started in 2002 in Edmond as a parent support group.  Melinda volunteered as Executive Director until 2012.  Melinda's prior experience includes ownership of Trinity Management Group, sales with Hewlett-Packard, and consultant with Alltel.  
Senior Staff
NameTitle
Dee BloseDirector of Program Development
Alicia ClarkDirector, Volunteers
Zac DavisDirector, Media and Invisible Layers
Crystal FrostDirector of Community Engagement
Trina Naff-EavesProgram Director
Stacey WeddingtonDirector of Community Impact
Staff
Number of Full-time Staff 4
Number of Part-time Staff 1
Number of Contract Staff 2
Number of Volunteers 700
Staff Retention Rate 100
Are professional development opportunities provided? Yes
Does CEO/Executive Director have formal evaluations? Yes
Management reports to board? Yes
Staff Demographics - Ethnicity
African American/Black 1
Caucasian 3
Native American/American Indian 1
Staff Demographics - Gender
Male 1
Female 5
Organizational Plans
Fundraising Plan Under Development
Policy against commission-based compensation for fundraising consultant Yes
Communication Plan Under Development
Strategic Plan Yes
Number of Years Strategic Plan Considers 2
Date Strategic Plan Adopted Feb 2015
Management Succession Plan No
Organization Policies and Procedures Yes
Collaborations
We have active partnerships with Youth & Family Services of El Reno for Bee's Knees and summer experiences.
Awards
Awards
Award/RecognitionOrganizationYear
Recipient of Double Wolf Dare Week Award and ContributionsEdmond Santa Fe High School2014
Risk Management Provisions
Directors and Officers Policy
Government Licenses
Is your organization licensed by the government (federal, state and/or local)? No
Comments on Staff & Management
CEO/Executive Director/Board Comments AutismOklahoma worked with a consultant to create a comprehensive Operations Manual in 2015. The manual includes all legally required governance, financial, and safety policies, and standard policies for all "Best Practice" organizations.
Board Chair
Name John Cooper
Company Affiliation Consumer Credit Counseling Services of Central Oklahoma
Term July 2016 to June 2017
Email jcooper@cccsok.org
Board of Directors
List Current as of Feb 13, 2017
Board of Directors List
NameAffiliationStatus
John Chay Vice PresidentVoting
John Cooper PresidentConsumer Credit Counseling of Central OklahomaVoting
Dr. Beth DeGrace OU Health Sciences CenterVoting
Paige Gregory Voting
Phil Inzinga Radio Executive Producer and co-host of The Morning AnimalsVoting
Melinda Lauffenburger DirectorTrinity Management Group LLCVoting
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 0
Native American/American Indian 0
Other 0 Parents of person with autism = 2
Board Demographics - Gender
Male 3
Female 3
Governance
Board Term Lengths 1 years
Percentage of Board Making Monetary Contributions to the Organization 100 %
Percentage of Board Making In-Kind Contributions to the Organization 80 %
Board Orientation Yes
Constituency Includes Client Representation No
Written Board Selection Criteria? Under Development
Standing Committees
Finance
Management
Comments on Board & Governance
CEO/Executive Director/Board Comments AutismOklahoma.org is a growing organization.  This past year, we implemented many of the infrastructure items including governance, program, staff, and volunteer policies and procedures.
Current Fiscal Year
Fiscal Year Jan 01, 2017-Dec 31, 2017
Current Year Budgeted Total Income $565,918
Current Year Budgeted Total Expenses $563,119
Financial Documents
IRS Letter of Determination
Prior Three Years' Financial History
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201520142013
Contributions------
Foundation and
Corporation Contributions
------
Government Contributions$137,675$0$0
Federal------
State------
Local------
Unspecified$137,675----
Individual Contributions$177,500$165,613$22,374
------
$37,855$65,102$136,613
Investment Income, Net of Losses$216$180$259
Unrealized Gain/Loss------
Membership Dues------
Special Events$41,648$44,076$85,479
Revenue In-Kind------
Other------
Expense Allocation
Fiscal Year201520142013
Program Expense$318,777$250,312$196,034
Administration Expense$15,449$14,162$25,999
Fundraising Expense$5,453$7,876$34,603
Payments to Affiliates------
Total Revenue/Total Expenses1.161.010.95
Program Expense/Total Expenses94%92%76%
Fundraising Expense/Contributed Revenue2%4%32%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$261,927$207,370$201,694
Current Assets$261,927$207,370$201,694
Long-Term Liabilities------
Current Liabilities$2,788$3,446$391
Total Net Assets$259,139$203,924$201,303
Solvency
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities93.9560.18515.84
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Funding Sources
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar AmountIndividuals $177,500Individuals $165,613Earned Revenue $136,613
Second Highest Funding Source & Dollar AmountGovt - Unspec $137,675Earned Revenue $65,102Special Events $85,479
Third Highest Funding Source & Dollar AmountSpecial Events $41,648Special Events $44,076Individuals $22,374
Endowment? No
Endowment Spending Policy N/A
Credit Line? Yes
Reserve Fund? Yes
Capital Campaign
Currently in a Capital Campaign? No
Comments on Financials
CEO/Executive Director/Board Comments After 2011, AutismOklahoma.org identified three events as fundraisers.  Our annual Drive for Autism, Dash Bash (called Boots and Bling in 2016) and our PieceWalk 5K. These 3 projects represent fundraisers with revenue.
Foundation Staff Comments
All prior year financial information is from IRS Form 990s.
 
Organizations with a GiveSmartOKC profile are responsible for updating information annually within 45 days following the end of their fiscal year.
Address 2801 NW 154th ST
Edmond, OK 73013 8805
Primary Phone 405 315-6337
Contact Email info@autismoklahoma.org
CEO/Executive Director Melinda Lauffenburger
Board Chair John Cooper
Board Chair Company Affiliation Consumer Credit Counseling Services of Central Oklahoma