Epilepsy Foundation of Oklahoma
11212 N. May Ave, Ste 108
Oklahoma City OK 73120
Tax Exempt Status Public Supported Charity
Mission Statement

Our mission for the Epilepsy Foundation of Oklahoma is:

To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

Contact Information
Contact Name Jenniafer Walters
Contact email jwalters@efa.org
Address 11212 N. May Ave, Ste 108
Oklahoma City, OK 73120
Phone (405) 463-0673
Fax 405-463-0985
County Oklahoma County
How to Give
Donate to Endowment http://occf.org/eaok/
Other ways to donate, support or volunteer

  • Mail a check
  • Volunteer opportunities
  • Donate with PayPal on our website
  • Donate through GiveSmartOKC

Financial Summary
 
 
Projected Revenue $29,048.00
Projected Expenses $35,045.00
History and Background
Former Names
NameYear
Epilepsy Association of the Sooner State2003
Epilepsy Association of Oklahoma2015
Year Founded 1978
IRS Ruling Year 1980
State Registration Expiration May 2020
Statements
Mission

Our mission for the Epilepsy Foundation of Oklahoma is:

To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

Background

Epilepsy Foundation Oklahoma provides Emergency Seizure Medication Assistance & Discount Drug Cards and CDC Program to include education on seizures for schools & nurses, first responders, law enforcement, communities & work force, seniors, seizure helmets, transportation, health fairs to educate, symposiums, Epilepsy 101, epilepsy literature, support groups throughout Oklahoma, website with resources & social media, monthly newsletter, CAN Program, and Kids Crew.

EFO has trained over 175 Law Enforcement personnel, over 2500 school personnel & nurses and over 250 staff for seniors. EFO helped find resources, long term medication assistance for over 5500 Oklahomans in 2018.

Impact

MORE PEOPLE DIE FROM EPILEPSY THEN BREAST CANCER!

65 MILLION: Number of people around the world who have epilepsy.

3 MILLION: Number of people in the United States who have epilepsy.

1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.

150,000: Number of new cases of epilepsy in the United States each year

ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.

6 OUT OF 10: Number of people with epilepsy where the cause is unknown.

 

DOLLARS IN OKLAHOMA:

  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • CDC Program - Education on Seizures for Schools & Nurses, Law Enforcement, EMS, Seniors, Communities & Work Force
  • Health Fairs To Educate, symposiums, epilepsy 101, seminars, 6-9 On the Road conferences
  • Epilepsy Literature
  • Support groups throughout Oklahoma
  • WebsitewWith Resources & Social Media
  • Office Staff & Monthly Newsletter
  • CAN Program & Kids Crew
  • Seizure Helmets
  • Transportation to and from doctor appointments & pharmacy

Needs

Volunteers for events and Health Fairs, ongoing funding partnership with companies or related organizations, medical assistants with pharmaceuticals.

CEO/Executive Director Statement
Update from the Executive Director of the NEW "Epilepsy Foundation of Oklahoma"
 
Welcome and thank you for visiting the Epilepsy Foundation of Oklahoma GiveSmart site. We are honored that you have joined us, and I hope you will find all the information you need here.
 
This year 2016, the Epilepsy Foundation of Oklahoma celebrated a great victory. After 38 years of operating independently we became a chapter of the Epilepsy Foundation of America. With their unwavering support and assistance we'll be able to make tremendous strides in our community.
 
In my role as Executive Director, I have the privilege of working with wonderful doctors and members of our community who strive to improve the lives of those living with epilepsy every day. I will continue my fight in raising AWARENESS, SERVICE to our community, our ADVANCEMENT in fundraising and PARTICIPATION in activities throughout the state, with the help and support of the Epilepsy Foundation of America.
 
We are committed to operating with an abundance of energy to bring our members information and referral services they need. We are passionate about educating the community about seizures and epilepsy, in order to reduce the stigma that many individuals face.
 
Thank you for your on going support throughout the years and always remember YOU ARE NOT ALONE and we're here to help.
 
I'm very excited for the future of the new Epilepsy Foundation of Oklahoma
 
Jenniafer Walters
Executive Director
Board Chair Statement
I challenge each and everyone of you to speak out about Epilepsy and NOT be afraid of Epilepsy. A tongue has NO bone but it can BREAK a heart, so...watch what you say to someone. Epilepsy is Not a MENTAL illness, Epilepsy is Not a CURSE, Epilepsy is Not CONTAGIOUS, Epilepsy is a Disorder. So don't be unaware, educate yourself.
Area Served
Area Served
Geographic Area Served
Oklahoma - Statewide
State of Oklahoma
Service Categories
Secondary Organizational Category Diseases Disorders & Medical Disciplines/Epilepsy
Tertiary Organizational Category Human Services/
Programs
Description
CDC Seizure Training for School Personnel, School Nurses, Law Enforcement (We have our CLEET #), First Responders and our new Senior Program. We provide FREE seizure training for schools, living centers, work place, law enforcement people any facilities to educate on seizures. We will leave a seizure kit, DVD's and material to help each place long after our training. We also provide seizure helmets and AmTrykes for people in need.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. EFO is educating schools, work places, senior living centers, people and our first responders on seizures and how to take care of people with epilepsy, signs to look for and that their ordinary people too.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has provided CDC Seizure Training to over 1200 school personnel and nurses, over 65 Law Enforcement and over 160 senior in centers. EFO has given away 5 AmTrykes to children with epilepsy and 75 seizure helmets to families with child that have epilepsy and to schools.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma and the CDC
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. We have served almost 1500 Oklahoman's educating them on epilepsy, help 5 children get mobile and out of their homes and provided 75 helmets to protect children's head. 
Description We provide awareness in our communities and out reach programs.  Our website provides links to key educational resources and opportunities available in the community in the State of Oklahoma.Social networking through Facebook is also provided on our website. EFO are partners in 7 On The Road conferences across the state in rural areas, we help with Health Fairs for all ages, Doctors Educational Classes 4 a year, Epilepsy Symposium each year and Epilepsy Webinars. EFO are partners with Sooner Start, we help with transitioning of children with disabilities into school also apart of Caregivers Coalition helping caregivers with their loved ones that have a disability of all ages. EFO can mail out epilepsy material across Oklahoma. At the State Capitol each year for Disability Awareness Day.  Support Groups across our state.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has reached over 5000 people in the state of Oklahoma educating on epilepsy, providing resources and material/brochures for families, caregivers and individuals.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma, Sooner Success, Sooner Start, Caregivers Coalition and Epilepsy Foundation of America
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. EFO goes where we are needed to provide materials, resources for families, caregivers and individuals needing help.
Description The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Our CAN groups raised over $5000 in 6 months to benefit the EFO and our programs here in Oklahoma.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. EFO has 5 regions set-up in Oklahoma with 9 Team Leaders and 25 Epilepsy Ambassadors to help the leaders. Having these wonderful volunteers across Oklahoma that understand the struggles of EPILEPSY and what families go through, they help the EFO connect with them and get resources to people with epilepsy. We fight together in educating and letting everyone know "They are not alone in this battle".
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma and our National office. 
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success.
A - S - A - P
A - Raise Awareness
S - Services to our Community
A - Advance Programs
P - Participate in Fundraising  
Description Each year in OKC there is an Annual Walk, that we sponsor and support.
Strategy
Population Served Families Children and Youth (0 - 19 years) General/Unspecified
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. Let Oklahoma families know we are here to help support them, let them know their not alone, raise awareness, educate and raise funds for our programs, epilepsy material and for research on epilepsy.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. EFO Walk is a family fun event for all ages.
Description EFO will provide seizure medication assistance for 1 month, help with long term medication with a Personal Assist Program and our discount medication card.  
Strategy
Population Served General/Unspecified People/Families with of People with Disabilities
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. Stepping in and paying for an one  month prescription we have helped over 60 individuals in a year.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. The Personal Assist Program is for 6-12 months, we have helped over 1500 people in a year.
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. Epilepsy Foundation of Oklahoma
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. Our Executive Director will meet the individual at the pharmacy and pay for the medication, the Personal Assistance Program we mail out an application or set a meeting up to help the patient with getting everything filled out and processed, we can mail out our discount proscription card to anyone.
Description We provide seizure helmets to protect heads during a seizure and fall.
Strategy
Population Served US US US
Program Short-term SuccessHelpDescription of short-term achievement(s) or improvement(s) that will result from this program. To protect the person head for further injury.
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. To protect the persons head so they don't cause further injury's, and help financially. 
Program Success MonitoringHelpDescription of the tools used to measure or track program impact. EFOK, we receive feedback from families.
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success.
Giving to the Epilepsy Foundation of Oklahoma means you make the world a better, easier, more manageable place for the 3 million people in the U.S. who are living with epilepsy and seizures.
Thank you for your help and support.
Description We provide transportation to and from your doctor's appointment & pharmacy to pick meds up.
Strategy
Population Served US US US
Program Long-term SuccessHelpDescription of the ultimate change(s) that will result from this program. This may be far into the future or represent an ideal state. helping financially for transportation so the individual can see their doctor is very important and getting prescription refills and sometimes a doctor won't refill unless they see you
Examples of Program SuccessHelpSpecific examples of changes in behaviors or testimonies of changes that demonstrate program success. If someone has a seizure they can not drive or some people don't have a drivers license, to be able to provide transportation for the patient so they don't miss the appointment is vital in helping keep a person seizure free and the doctor up to date on their progress. We also provide transportation to their pharmacy to pick their meds up and everyone should know how important it is to take their medication on time each and every day to keep their disease under control.
Comments on Programs
CEO/Executive Director/Board Comments
We at the Epilepsy Foundation of Oklahoma are working hard to get the word out about "Epilepsy". It's not something to be embarrassed about,1 out of 26 people and over 3.5 million people have epilepsy in the U.S. More people die from epilepsy then Breast Cancer. So the Epilepsy Foundation is educating and training the people of Oklahoma and providing help where we can. Every donation helps our cause in getting the CDC Seizure Training Programs, literature, medication and support groups. The Epilepsy Foundation of Oklahoma personally "Thank You" for your support in our mission.
CEO/Executive Director
CEO/Executive Director Jenniafer Walters
Start Date Sept 2006
Email jwalters@efa.org
Experience
I'm proud to be apart of this organization here in Oklahoma. My daughter has had epilepsy all of her life. I have walk beside her on this journey and have seen first hand the struggles and heartache she has gone through. She has endured more than a person should for a young adult. As always, I'll fight this battle with her and let her know she is not alone. I will always speak up and  advocate  for anyone with epilepsy.
Senior Staff
NameTitle
Jerretta TaylorAdministrative Coordinator
Staff
Number of Full-time Staff 1
Number of Part-time Staff 1
Number of Contract Staff 1
Number of Volunteers 5
Staff Retention Rate 100
Are professional development opportunities provided? Yes
Does CEO/Executive Director have formal evaluations? Yes
Management reports to board? Yes
Staff Demographics - Gender
Male 4
Female 6
Organizational Plans
Fundraising Plan Yes
Policy against commission-based compensation for fundraising consultant No
Communication Plan Under Development
Strategic Plan Under Development
Management Succession Plan Under Development
Organization Policies and Procedures Under Development
Government Licenses
Is your organization licensed by the government (federal, state and/or local)? Yes
Comments on Staff & Management
CEO/Executive Director/Board Comments
While we don't have a formal fundraising plan, the majority of our activities raise funds for our organization. Events such as our, annual 5K Run in April, annual Epilepsy Walk in April, purple pumpkin project in Oct. and our new Community Action Network & Kids Crew, we also have many small events throughout the year.
Board Chair
Name Ms. Leslie Campbell
Company Affiliation LivaNova,Community Health Charities,Community Foundation,Lundbeck LLC.,Eisai Inc., Supernus Pharmaceuticals,Sunovion Pharmaceuticals, Ambucs,NeuroPace
Term Jan 2019 to Jan 2021
Email jwalters@efa.org
Board of Directors
List Current as of Jan 01, 2019
Board of Directors List
NameAffiliationStatus
Carrie BentonLivaNova SpecialistVoting
Leslie CampbellCBD + USA, Campbells Roofing & ConstructionVoting
Shelly DouglasCommunity Health CharitiesVoting
Janet GrayVoting
Scott MullinsEisai Inc. Epilepsy Sales SpecialistVoting
David PeakVoting
Cyndi RamirezOptum RXVoting
Philip A. SchovanecAttorneyVoting
Lisa SpencerCommunity VolunteerVoting
Chris Tate
Kevin D. WaltersXpedx, Senior Account ManagerVoting
Board Demographics - Gender
Male 6
Female 6
Governance
Board Term Lengths 3 years
Percentage of Board Making Monetary Contributions to the Organization 90 %
Percentage of Board Making In-Kind Contributions to the Organization 100 %
Board Orientation Yes
Constituency Includes Client Representation Yes
Written Board Selection Criteria? Yes
Standing Committees
Advisory Board / Advisory Council
Youth
By-laws
Community Outreach / Community Relations
Education
Capital Campaign
Endowment
Program / Program Planning
Research Division
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Volunteer
Student Affairs
Donor Services
Legislative
Marketing
Project Oversight
Advisory Board
Advisory Board Members
NameAffiliation
Shirley BrackenArthur
Phillip SchovanecAttorney w/Moricoli, Harris & Cottingham & Hurst
Beverly YoungWork Activity Center Inc.
Comments on Board & Governance
CEO/Executive Director/Board Comments
All of our board members volunteers their time, no body gets paid.  Each and everyone of our board members have been touched by Epilepsy. They have epilepsy their self or a family member, friend or on the job. The board members of Epilepsy Foundation have compassion, understanding and experience to give to others.
Current Fiscal Year
Fiscal Year July 01, 2019-June 30, 2020
Current Year Budgeted Total Income $29,048
Current Year Budgeted Total Expenses $35,045
IRS Letter of Determination
Prior Three Years' Financial History
Revenue and ExpensesHelpFinancial data for prior years is entered by foundation staff based on the documents submitted by nonprofit organizations.Foundation staff members enter this information to assure consistency in the presentation of financial data across all organizations.
Fiscal Year201920182017
Total Revenue$20,970,165$23,636,938$16,520,637
Total Expenses$23,469,137$17,310,878$15,211,196
Revenue Less Expenses($2,498,972)$6,326,060$1,309,441
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201920182017
Contributions$11,252,024$17,517,739$9,399,955
Foundation and
Corporation Contributions
------
Government Contributions$3,837,368$3,291,311$3,275,184
Federal------
State------
Local------
Unspecified$3,837,368$3,291,311$3,275,184
Individual Contributions------
------
$1,677,815$954,377$922,816
Investment Income, Net of Losses$262,896$220,796$158,213
Unrealized Gain/Loss$627,907$170,112$566,192
Membership Dues------
Special Events$3,229,305$1,470,425$931,590
Revenue In-Kind------
Other$82,850$12,178$1,266,687
Expense Allocation
Fiscal Year201920182017
Program Expense$19,082,576$14,461,204$11,880,755
Administration Expense$1,609,580$900,742$1,262,172
Fundraising Expense$2,776,981$1,948,932$2,068,269
Payments to Affiliates------
Total Revenue/Total Expenses0.891.371.09
Program Expense/Total Expenses81%84%78%
Fundraising Expense/Contributed Revenue25%11%22%
Assets and Liabilities
Fiscal Year201920182017
Total Assets$20,192,871$21,501,992$14,871,808
Current Assets$2,889,739$5,104,043$725,337
Long-Term Liabilities------
Current Liabilities$3,108,552$1,918,701$1,614,576
Total Net Assets$17,084,319$19,583,291$13,257,232
Solvency
Short Term Solvency
Fiscal Year201920182017
Current Ratio: Current Assets/Current Liabilities0.932.660.45
Long Term Solvency
Fiscal Year201920182017
Long-Term Liabilities/Total Assets0%0%0%
Funding Sources
Top Funding Sources
Fiscal Year201920182017
Top Funding Source & Dollar AmountContributions $11,252,024Contributions $17,517,739Contributions $9,399,955
Second Highest Funding Source & Dollar AmountGovt - Unspecified $3,837,368Govt - Unspecified $3,291,311Govt - Unspecified $3,275,184
Third Highest Funding Source & Dollar AmountSpecial Events $3,229,305Special Events $1,470,425Special Events $931,590
Endowment? Yes
Endowment Spending Policy Percentage
Endowment Spending Policy Percentage (if selected) 5 %
Credit Line? Yes
Reserve Fund? Yes
Capital Campaign
Currently in a Capital Campaign? No
Comments on Financials
CEO/Executive Director/Board Comments
As of April 2016 the Epilepsy Association of Oklahoma merged with the Epilepsy Foundation of America and our name changed to the Epilepsy Foundation of Oklahoma and we became a chapter so financials will reflect Oklahoma too. This merger will only strengthen our ability to assist our fallow Oklahoman's with our many existing programs. With the strength of our national organization, behind us we hope to bring even more programs to the state.
Foundation Staff Comments
All prior year financial information is from the IRS Form 990s.
 
Note:  FY2017 "Other" revenue includes $1,249,391 net assets transfers from Epilepsy Research Foundation. 
 
Contributions may include foundations and corporations when the breakout was not available. 
 
The financial information presented is obtained from the following sources: IRS Form 990, independent audit reports, financial statements – board approved when available, and supplemental information from the organization. We do not warrant or guarantee the timeliness, errors or inaccuracies. With respect to information regarding financial performance, nothing on this website should be interpreted as a statement or interpretation by OCCF staff.

Organizations with a GiveSmartOKC profile are responsible for updating information annually within 45 days following the end of their fiscal year.
Address 11212 N. May Ave, Ste 108
Oklahoma City, OK 73120
Primary Phone 405 463-0673
Contact Email jwalters@efa.org
Give to Endowment http://occf.org/eaok/
CEO/Executive Director Jenniafer Walters
Board Chair Ms. Leslie Campbell
Board Chair Company Affiliation LivaNova,Community Health Charities,Community Foundation,Lundbeck LLC.,Eisai Inc., Supernus Pharmaceuticals,Sunovion Pharmaceuticals, Ambucs,NeuroPace